Background: Chronic physical illness places a heavy burden on both the sufferer and the caregiver. Thus, there is a psychological, physical, and economic burden on family members. Caring for physically ill patients places stress and burden on caregivers. Caregivers adopt different ways to cope with it. This study was conducted to assess the burden among caregivers of physically ill patients. Several studies have specifically focused on the quality of life of caregivers of patients with physical illness. Objectives: This study examined the burden of caregivers of patients with physical illness. Methods: A cross-sectional descriptive design was employed, and 50 participants from physical illness. The data was collected through Zarit Burden Interview and activities of daily living with Socio-demographic variables of both patient and caregivers. Data was analyzed by SPSS 20 statistical software. Results: There was no significant association between caregiver burden and Socio-demographic variables like gender, domicile, educational status, marital status, type of family, occupation, religion, duration of the stay with patient, employment status, family income status except debt due to illness with which association present the findings also showed that caregivers of patients with mental illness experiences more burden than caregiver of patients with physical illness. Conclusion: There is a need to provide social support for caregivers. The outcome of this study may help the health care providers in designing stress relief programme and better delivery system of cares for primary caregivers by proper specific framing and psycho-education programs.
Published in | American Journal of Nursing Science (Volume 14, Issue 4) |
DOI | 10.11648/j.ajns.20251404.13 |
Page(s) | 83-90 |
Creative Commons |
This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited. |
Copyright |
Copyright © The Author(s), 2025. Published by Science Publishing Group |
Physical Illness, Burden, Caregiver, Coping, Patient
S.No | Socio-demographic Variables | Frequency (N) | Percentage (%) |
---|---|---|---|
1. | Gender | ||
Male | 56 | 56.0 | |
Female | 44 | 44.0 | |
2. | Domicile | ||
Rural | 65 | 65.0 | |
Urban | 35 | 35.0 | |
3. | Educational Status | ||
Up to intermediate | 47 | 47.0 | |
Graduate and postgraduate | 53 | 53.0 | |
4. | Marital Status | ||
Married | 77 | 77.0 | |
Unmarried | 23 | 23.0 | |
5. | Type of Family | ||
Nuclear Family | 53 | 53.0 | |
Joint Family | 47 | 47.0 | |
6. | Occupation | ||
Skilled Worker | 33 | 33.0 | |
Unskilled Worker | 67 | 67.0 | |
7. | Religion | ||
Hindu | 90 | 90.0 | |
Muslim | 10 | 10.0 | |
8. | Relationship With Patient | ||
Mother | 23 | 23.0 | |
Father | 15 | 15.0 | |
Brother | 11 | 11.0 | |
Sister | 02 | 02.0 | |
Husband | 13 | 13.0 | |
Wife | 14 | 14.0 | |
Daughter | 04 | 04.0 | |
Son | 12 | 12.0 | |
Others | 06 | 06.0 | |
9. | Duration of stay with the patient | ||
More than 10 years | 82 | 82.0 | |
Less than 10 years | 18 | 18.0 | |
10. | Helping People | ||
Family members | 96 | 96.0 | |
Neighbours | 1 | 1.0 | |
Religious people | 1 | 1.0 | |
Others | 2 | 2.0 | |
11. | Debt due to illness | ||
Taken | 48 | 48.0 | |
Not taken | 52 | 52.0 | |
12. | Employment Status | ||
Employed | 53 | 53.0 | |
Unemployed | 47 | 47.0 | |
13. | Family income status | ||
Income less than expenditure | 51 | 51.0 | |
Income equal to or more than expenditure | 49 | 49.0 |
S.No | Variables | Frequency (N) | Percentage (%) |
---|---|---|---|
1. | Age | ||
Up to 30 years | 48 | 48.0 | |
31-40 years | 14 | 14.0 | |
41-50 years | 18 | 18.0 | |
More than 50 years | 20 | 20.0 | |
2. | Gender | ||
Male | 58 | 58.0 | |
Female | 42 | 42.0 | |
3. | Educational Status | ||
Low | 45 | 45.0 | |
Average | 26 | 26.0 | |
High | 29 | 29.0 | |
4. | Marital Status | ||
With partner | 56 | 56.0 | |
Without partner | 44 | 44.0 | |
5. | Occupation | ||
Employed | 69 | 69.0 | |
unemployed | 31 | 31.0 | |
6. | Diagnosis Physical | ||
Cardiac disorder | 12 | 12.0 | |
Neurological disorder | 30 | 30.0 | |
Oncology disorder | 22 | 22.0 | |
Gastroenterology disorder | 28 | 28.0 | |
Burn | 08 | 08.0 |
S.No. | Activities of Daily Living | Frequency (N) | Percentage (%) |
---|---|---|---|
1. | Dependent | 23 | 23.0 |
2. | Partial Dependent | 23 | 23.0 |
3. | Independent | 54 | 54.0 |
Variables | Little or No burden | Mild to Moderate | Moderate to Severe | Total | χ2 | P value |
---|---|---|---|---|---|---|
Gender | 0.087 | 0.957 NS | ||||
Male | 14 | 29 | 13 | 56 | ||
Female | 10 | 23 | 11 | 44 | ||
Domicile | 2.170 | 0.338 NS | ||||
Rural | 15 | 37 | 13 | 65 | ||
Urban | 9 | 15 | 11 | 35 | ||
Educational Status | 2.482 | 0.289 NS | ||||
Up to intermediate | 13 | 26 | 8 | 47 | ||
Graduate and Post graduate | 11 | 26 | 16 | 53 | ||
Marital Status | 0.118 | 0.943 NS | ||||
Married | 18 | 40 | 19 | 77 | ||
Unmarried | 6 | 12 | 5 | 23 | ||
Type of Family | 1.672 | 0.434 NS | ||||
Single Family | 14 | 29 | 10 | 53 | ||
Joint Family | 10 | 23 | 14 | 47 | ||
Occupation | 0.222 | 0.895 NS | ||||
Skilled Worker | 7 | 18 | 8 | 33 | ||
Unskilled Worker | 17 | 34 | 16 | 67 | ||
Religion | 1.674 | 0.433 NS | ||||
Hindu | 23 | 45 | 22 | 90 | ||
Muslim | 1 | 7 | 2 | 10 | ||
Duration of stay with the patient | 1.067 | 0.587 NS | ||||
More than 10 years | 20 | 44 | 18 | 82 | ||
Less than 10 years | 4 | 8 | 6 | 18 | ||
Debt due to illness | 16.507 | 0.000 S | ||||
Taken | 5 | 24 | 19 | 48 | ||
Not taken | 19 | 28 | 5 | 52 | ||
Employment Status | 0.334 | 0.846 NS | ||||
Employed | 12 | 29 | 12 | 53 | ||
Unemployed | 12 | 23 | 12 | 47 | ||
Family income status | 8.707 | 0.013 NS | ||||
Income less than expenditure | 8 | 25 | 18 | 51 | ||
Income equal to or more than expenditure | 16 | 27 | 6 | 49 |
WHO | World Health Organization |
ZBI | Zarit Burden Interview |
BAS | Burden Assessment Schedule |
ADL | Activities of Daily Living |
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APA Style
Jyoti, S., Seema, K., Mona, S. (2025). Burden of Caregivers of Patients with Physical Illnesses in SSH, BHU. American Journal of Nursing Science, 14(4), 83-90. https://doi.org/10.11648/j.ajns.20251404.13
ACS Style
Jyoti, S.; Seema, K.; Mona, S. Burden of Caregivers of Patients with Physical Illnesses in SSH, BHU. Am. J. Nurs. Sci. 2025, 14(4), 83-90. doi: 10.11648/j.ajns.20251404.13
@article{10.11648/j.ajns.20251404.13, author = {Srivastava Jyoti and Khanna Seema and Srivastava Mona}, title = {Burden of Caregivers of Patients with Physical Illnesses in SSH, BHU }, journal = {American Journal of Nursing Science}, volume = {14}, number = {4}, pages = {83-90}, doi = {10.11648/j.ajns.20251404.13}, url = {https://doi.org/10.11648/j.ajns.20251404.13}, eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ajns.20251404.13}, abstract = {Background: Chronic physical illness places a heavy burden on both the sufferer and the caregiver. Thus, there is a psychological, physical, and economic burden on family members. Caring for physically ill patients places stress and burden on caregivers. Caregivers adopt different ways to cope with it. This study was conducted to assess the burden among caregivers of physically ill patients. Several studies have specifically focused on the quality of life of caregivers of patients with physical illness. Objectives: This study examined the burden of caregivers of patients with physical illness. Methods: A cross-sectional descriptive design was employed, and 50 participants from physical illness. The data was collected through Zarit Burden Interview and activities of daily living with Socio-demographic variables of both patient and caregivers. Data was analyzed by SPSS 20 statistical software. Results: There was no significant association between caregiver burden and Socio-demographic variables like gender, domicile, educational status, marital status, type of family, occupation, religion, duration of the stay with patient, employment status, family income status except debt due to illness with which association present the findings also showed that caregivers of patients with mental illness experiences more burden than caregiver of patients with physical illness. Conclusion: There is a need to provide social support for caregivers. The outcome of this study may help the health care providers in designing stress relief programme and better delivery system of cares for primary caregivers by proper specific framing and psycho-education programs.}, year = {2025} }
TY - JOUR T1 - Burden of Caregivers of Patients with Physical Illnesses in SSH, BHU AU - Srivastava Jyoti AU - Khanna Seema AU - Srivastava Mona Y1 - 2025/08/27 PY - 2025 N1 - https://doi.org/10.11648/j.ajns.20251404.13 DO - 10.11648/j.ajns.20251404.13 T2 - American Journal of Nursing Science JF - American Journal of Nursing Science JO - American Journal of Nursing Science SP - 83 EP - 90 PB - Science Publishing Group SN - 2328-5753 UR - https://doi.org/10.11648/j.ajns.20251404.13 AB - Background: Chronic physical illness places a heavy burden on both the sufferer and the caregiver. Thus, there is a psychological, physical, and economic burden on family members. Caring for physically ill patients places stress and burden on caregivers. Caregivers adopt different ways to cope with it. This study was conducted to assess the burden among caregivers of physically ill patients. Several studies have specifically focused on the quality of life of caregivers of patients with physical illness. Objectives: This study examined the burden of caregivers of patients with physical illness. Methods: A cross-sectional descriptive design was employed, and 50 participants from physical illness. The data was collected through Zarit Burden Interview and activities of daily living with Socio-demographic variables of both patient and caregivers. Data was analyzed by SPSS 20 statistical software. Results: There was no significant association between caregiver burden and Socio-demographic variables like gender, domicile, educational status, marital status, type of family, occupation, religion, duration of the stay with patient, employment status, family income status except debt due to illness with which association present the findings also showed that caregivers of patients with mental illness experiences more burden than caregiver of patients with physical illness. Conclusion: There is a need to provide social support for caregivers. The outcome of this study may help the health care providers in designing stress relief programme and better delivery system of cares for primary caregivers by proper specific framing and psycho-education programs. VL - 14 IS - 4 ER -